Virsaviya "Bathsheba" Borun-Goncharova is almost 6 years old and acts like any young girl her age except she suffers from thoraco-abdominal syndrome or Pantalogy of Cantrell, a rare syndrome in which she was born with her heart and other organs outside her chest cavity. Her heart can be visibly seen beating with only a thin layer of skin to protect it...
A fundraising page,
YouCaring, has been set up for Virsaviya.
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